For CF R.I.S.E. Portal



Tools & Resources


CF R.I.S.E. gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.



Tools & Resources


CF R.I.S.E. gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.




How will you measure progress?


Use these helpful tools to check your learning and knowledge.





CF Knowledge Assessments icon

Patient Assessments

Helps identify areas where the person with CF can improve their knowledge on important CF topics so a personalized educational plan can be developed


WHO

People with CF ages 10-15 and 16-25, families & care teams

WHERE

Completed at CF center

WHEN

Each quarterly CF center visit or at the CF care team’s discretion


CF Checklists icon

Patient Checklists

Helps someone with CF develop appropriate self-care skills by working with their parents or support system and CF care team


WHO

People with CF ages 10-15 and 16-25 & parent(s)/support person(s)

WHERE

Completed at CF center

WHEN

Annually or at the CF care team’s discretion






CF Resources icon

Care Team Progress
Report

Helps someone with CF track improvement in CF responsibilities over time and develop actionable transition goals at every visit


WHO

People with CF ages 10-15 and 16-25, families & care teams

WHERE

Completed at CF center

WHEN

Upon completion of the Responsibilities Checklist, Knowledge Assessment or when a new transition goal is identified


CF Resources icon

Educational Resource
Guide

Gives those with CF access to educational resources to overcome knowledge gaps identified in the assessments


WHO

People with CF ages 10-15 and 16-25 & care teams

WHERE

Completed at CF center

WHEN

After reviewing assessment results and when someone is looking for additional resources







Feel free to access and download PDFs for all program tools.



Resources for ages 10-15

Resources for ages 16-25





CF Checklists icon

Responsibilities Checklists

Goal:

To help the caregiver and patient gradually transition responsibility for CF care at home, in the medical system and in daily life to the person with CF



Checklists for Support Person




Checklists for People with CF




CF Resources icon

Care Team Resources

Goal:

To help the care team stay on track in terms of their roles and responsibilities toward people with CF and their families



Tools to Educate Your CF Patients and Families about CF R.I.S.E.


Intro to CF R.I.S.E Tear Sheet

Tool to support the introduction of CF R.I.S.E. to patients and families (Email support@cfrise.com to order a printed tear pad)


Family Day Presentation

PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)



Tools to Help You Administer CF R.I.S.E.


Educational Resource Guide

This PDF includes hyperlinks to educational resources on topics addressed in the Knowledge Assessments


CF Glossary / En Español

Helpful tool for patients and families which provides definitions and pronunciations of commonly used CF-related terms


Progress Report / En Español

Resource to track patient progress, including results history and transition goals









CF Resources icon

Care Team Resources

Goal:

To help the care team stay on track in terms of their roles and responsibilities toward people with CF and their families



Tools to Educate Your CF Patients and Families about CF R.I.S.E.


Intro to CF R.I.S.E. Tear Sheet

Tool to support the introduction of CF R.I.S.E. to patients and families (Email support@cfrise.com to order a printed tear pad)


Family Day Presentation

PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)



Tools to Help You Administer CF R.I.S.E.


Educational Resource Guide

This PDF includes hyperlinks to educational resources on topics addressed in the Knowledge Assessments


CF Glossary / En Español

Helpful tool for patients and families which provides definitions and pronunciations of commonly used CF-related terms


Progress Report / En Español

Resource to track patient progress, including results history and transition goals





Our Team


Those living with CF, their parents and care teams can gain valuable insight from the Transition Advisory Council (TAC), a supportive group comprised of CF experts.