Tools & Resources
CF R.I.S.E. gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.
Tools & Resources
CF R.I.S.E. gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.
How will you measure progress?
Use these helpful tools to check your learning and knowledge.
Knowledge Assessments
Helps identify areas where the person with CF can improve their knowledge on important CF topics so a personalized educational plan can be developed
WHO
People with CF ages 10-15 and 16-25, families & care teams
WHERE
Completed at CF center
WHEN
Each quarterly CF center visit or at the CF care team’s discretion
Responsibilities Checklists
Helps someone with CF develop appropriate self-care skills by working with their parents or support system and CF care team
WHO
People with CF ages 10-15 and 16-25 & parent(s)/support person(s)
WHERE
Completed at CF center
WHEN
Annually or at the CF care team’s discretion
Care Team Resources
Helps care team members administer CF R.I.S.E. and educate people with CF and their families about this program
WHO
Care teams
WHERE
Used in CF center
WHEN
To support program education and administration
Knowledge Assessments
Goal:
To help the person with CF understand their level of CF knowledge in various aspects of CF care
General CF Health / En Español
CF & School / En Español
CF & Growing Up / En Español
Screening & Prevention / En Español
Emotional Wellness / En Español
Responsibilities Checklists
Goal:
To help the caregiver and patient gradually transition responsibility for CF care at home, in the medical system and in daily life to the person with CF
Checklists for Support Persons
Checklists for People with CF
Care Team Resources
Goal:
To help care team members administer CF R.I.S.E. and educate people with CF and their families about this program
Tools to Educate People with CF and Their Families about CF R.I.S.E. and Transition
Handout that can be used in clinic or sent home, explaining the importance of transition and providing a high-level overview of the CF R.I.S.E. program
PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)
An overview of age-appropriate CF skills and knowledge that a family can work toward as the person with CF grows up
Provides detailed list of CF skills and knowledge, organized by age and stage, that a family can work toward as the person with CF grows up
Tools to Help You Administer CF R.I.S.E.
Helpful tools for people with CF and their families which provide definitions and pronunciations of commonly used CF-related terms
Resource to track how a person with CF is progressing, including results history and transition goals
Provides a detailed description of the CF R.I.S.E. tools and tips for implementation
A template for care teams to complete after training to help bring structure to how, when, where, and by whom the program will be implemented
Knowledge Assessments
Goal:
To help the person with CF understand their level of CF knowledge in various aspects of CF care
CF-Related Diabetes / En Español
Equipment Maintenance & Infection Control / En Español
Lifestyle / En Español
Emotional Health / En Español
General CF Health / En Español
Male Sexual Health / En Español
Insurance & Financial / En Español
CFTR Modulators / En Español
Responsibilities Checklists
Goal:
To help the caregiver and patient gradually transition responsibility for CF care at home, in the medical system and in daily life to the person with CF
Checklists for Support Persons
Checklists for People with CF
Care Team Resources
Goal:
To help care team members administer CF R.I.S.E. and educate people with CF and their families about this program
Tools to Educate People with CF and Their Families about CF R.I.S.E. and Transition
Handout that can be used in clinic or sent home, explaining the importance of transition and providing a high-level overview of the CF R.I.S.E. program
PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)
An overview of age-appropriate CF skills and knowledge that a family can work toward as the person with CF grows up
Provides detailed list of CF skills and knowledge, organized by age and stage, that a family can work toward as the person with CF grows up
Tools to Help You Administer CF R.I.S.E.
Helpful tools for people with CF and their families which provide definitions and pronunciations of commonly used CF-related terms
Resource to track how a person with CF is progressing, including results history and transition goals
Provides a detailed description of the CF R.I.S.E. tools and tips for implementation
A template for care teams to complete after training to help bring structure to how, when, where, and by whom the program will be implemented
Our Team
Those living with CF, their parents and care teams can gain valuable insight from the Transition Advisory Council (TAC), a supportive group comprised of CF experts.